Lived Experience Delphi study
Investigator: Associate Professor Jo Robinson
What does the study aim to do?
Our goal is to understand how suicide prevention researchers can partner with young people in ways that are safe, effective, and meaningful.
A Delphi research method is a way to get agreement from experts around a particular topic.
In the first stage of this study, we engaged with a group of experts (researchers and young people with lived experience) and searched the scientific literature to develop 1) best practice guidelines for researchers and 2) a toolkit for young people to support their involvement in suicide research activities.
We are now recruiting participants for the second stage which will narrow down and refine what will be included in the final set of best practice guidelines.
You will be asked to rate statements that could possibly be included in the guidelines we are trying to develop.
If you agree to participate, you will be invited to complete 2-3 surveys. Each survey will take about one hour to complete.
You will be reimbursed AU $30 per hour for your time.
To participate in this study, you must meet the following five criteria:
- You are aged 15 to 30 years;
- You currently live in one of the following six countries: Australia, Ireland, Canada, United States of America, New Zealand, United Kingdom;
- You identify as having a lived experience of suicide and/or self-harm;
- You have participated in a research study focused on your lived experience of suicide or self-harm in the past when aged 15 to 25 years (this may have been as a research participant, youth advisor, co-researcher, steering committee advisor or in another capacity);
- You have not been bothered by suicidal thoughts on more than half the days in the past two weeks.
Please note, if you are aged under 18, you will need consent from a parent, guardian or carer before you can take part. You will also need to agree that we can contact this person if we are worried about your safety at any time during the study.
 Having a ‘lived experience of suicide’ is when a person has experienced any of the following: a) Suicidal thoughts or feeling suicidal; b) Surviving a suicide attempt; c) Caring for someone through a suicidal crisis or d) Being bereaved by (losing a friend or loved one to) suicide.
What are the benefits of being involved?
By participating in this research you will be able to apply your knowledge and experience to help make sure the guidelines are informed by young people’s real-life experiences and opinions.
These guidelines will support researchers to feel more confident when involving young people actively in their work.
Overall, it is expected that involving more young people meaningfully in suicide research will lead to better outcomes for researchers, young people and their communities.
Participation in the study is completely voluntary and Orygen researchers will ensure participants have all information about the study before they provide consent.
If you are interested in participating in the study, please complete the form below.
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